It's been about an hour...

They came for her at 9:30 and we walked beside her as the nurse wheeled her on the bed (she wanted to go for a "ride"). She started to cry once we stopped at the door that we could no longer go through...we told her we would see her in a few minutes and through her tears she kept saying "Nuh uh", which is what she often says now when she doesn't want to do something. I just hope they put her to sleep quickly so she didn't have to cry for long. We got some breakfast and we are back in the room now just waiting for the phone call that everything is over.

We've arrived

It's only 6:45 am but it feels like it should be lunch time (we've been up since 3). We arrived here on time, we've been admitted and we're now in our room (502) waiting. YouYou slept the whole way here but she woke up while we were being admitted and the first thing she wanted to do was eat. She pointed to the plate of brownies I brought for the nurses and said "Ma wan dat", which means "Me want that". Then she found the refrigerator in our room and pointed to the ice crystals and then pointed to her mouth, which meant she wanted to eat the ice. Let's just hope they take her back soon because I'm not sure how long she'll stay happy without food or drink. I think the floor here is familiar to her, she seems to know her way around (Neesie is taking her for a walk now). I'll update again once they take her back.

Heart cath tomorrow

Tomorrow morning we'll be leaving our house around 4:00 am to drive to UAB for YouYou's heart cath. We'll be taking the laptop with us and will update this blog during the day. If everything goes smoothly we will be coming home late tomorrow night, but we have to be prepared to spend the night just in case. Thank you in advance for your prayers.

A Great Checkup!

We had a very good appointment with YouYou's cardiologist yesterday. In fact it was the first time I have left his office feeling better about things than when we went in (and that has nothing to do with Dr. Romp's personality or anything, it's everything to do with the seriousness of her condition)! Not only had YouYou gained a pound and a half, the Dr. said that her right ventricle was pumping SO MUCH better than he had ever seen it pump, her left ventricle looked good also, her valves seemed to be leaking less (which means the medicine she is on is working), her liver and heart were no longer enlarged, AND HE ONLY SAW TWO VSD'S (holes in her heart)!!!! I'm praising God for this good report!!! We are still scheduled to have a heart cath on June 11 but Dr. Romp said he expects that the cath will confirm what he thinks he is seeing in the echo...which is basically that her heart is functioning well right now. I think if she did not already have some damage to her lungs from the pulmonary hypertension he would not even worry about us having the heart cath. But he is trying to protect her lungs from further damage and the only way to be certain that she does not need any further surgeries right now is to get the kind of information that the cath will provide.

Thank you Father for your work of healing in YouYou's heart.

YouYou has wanted to get her hair cut since she saw her big brother get his cut a few weeks ago. I'm letting her bangs grow out so it was time to trim the ends of hers a bit - and she couldn't have been happier. She kept saying "YouYou geh hair-ee cut", which means YouYou is getting a hair cut :)

We'll be going to B'ham on Tuesday for an appointment with the cardiologist. I'll update once we get home. Happy Memorial Day!

Nachos

This is what I do while my brothers play t-ball...

100 Days

You You has officially been in our family now for 100 days!! I took this picture of her today. Isn't she a little cutie patootie?!!

FYI...we had to reschedule her heart cath procedure because we had a conflict. The new date is June 11 and because we are putting it off a few more weeks we will be visiting her cardiologist on May 26th for a post op visit. Thank you all for your prayers!