YouYou's first check-up with the cardiologist was on Monday of this week. I'm so thankful that she is such a good car rider since we will be making so many trips to B'ham :) She did great and was not scared at all, but she was a little more "active" during the echo (kind of like an ultrasound) than she was the first time we visited Dr. Romp (this was the time she laid still for at least 20 minutes).
Overall Dr. Romp was very pleased with how YouYou is recovering. Her incision is healing well and her appetite has increased. There are 2 areas of concern at this point though, the leakiness in the mitral and tricuspid valves and the small VSD's (holes) that have appeared since surgery. I have been told it is not highly uncommon for these holes to appear around the patch in VSD's as large as hers, but I still don't like it :( She is on medication that in time will hopefully help decrease the leakiness in the valves, and the Dr. said he "might" be seeing some small improvement since her last echo (but he wants to see more). The not so good part is that because of her type of transposition the Dr.'s cannot really tell the size of the holes through an echo. So...we are scheduled for another heart cath on May 21st (to determine whether or not they see a need for YouYou to undergo another sugery). I asked Dr. Romp if I should just try to get used to the idea of frequent heart cath's in our future, and he said we shouldn't be needing to do them every few months but it is something she will have done more than other children because of her uniquely formed heart.
What does this mean?? Well, this means I'm asking God for a miracle. I'm asking and believing that if it is His will that these holes will either be tee-tiny non problematic holes or that they will be gone entirely! I know God can do this, and I also know that He might choose not to...regardless though I will pray and I will trust Him. Will you join me?
