Sunday night post

I'm sitting here with my sister, it's 10:45 pm, and YouYou is finally asleep. I just told my sister..."I don't even know what to say on the blog about a day like today?" It was a very difficult day. There were a few little bright moments, like when YouYou tried to laugh with her brothers this evening, and when she finally ate a few bites of noodles and a few bites of a cereal bar (thank you Tina Marie :) But other than that it was just plain hard. She cried for most of the day, even though we stayed on top of her pain medication. She had it every single time it was allowed. We also had what the nurses call "Magic Mouthwash", which is a combination of Nystatin, Lydocain, and Benadryl, but it does not seem to be helping much at all. I really think if it was not for her mouth pain she would be doing so much better. She can't eat, so she doesn't have energy to move around, and since she is not moving around much she is swelling up like a little piggy. Her little face is so swolen and she has the puffiest lips you have ever seen. She also has a 2 inch spot on her right cheek that is rubbed raw from the oxygen nose tube (it was taped too tightly or something, but the tape has now been removed). So with her puffy eyes, cheeks and mouth...she looks like she lost a big fight.

So the thing I would like prayer for the most is for healing in her little mouth. It is filled with sores, and no one really seems to know what it is. It's so hard to see your child in pain like this. She wants to eat, but she cries out in pain when anything is put in her mouth. We cannot leave until she can eat and drink. It will be at least Tuesday before we can go home, and possibly Wednesday or even later.

I so don't want to be a negative nancy, so please forgive me if I sound that way. I still know my God is good and He is in control.

P.S. Thank you all for your prayers. And if you live in our hometown and can help my sweet hubby out with some home cooked meals I'm sure he would be most appreciative :)